Clinical Services Archives - East Cheshire Hospice

1913 Model T Ford visits the Hospice

A VIP guest took centre stage at East Cheshire Hospice, attracting attention and providing entertainment and nostalgia for outpatients.

The dark green 1913 Model T Ford, driven by its owner Steve Nixon, drew admiring glances from patients, staff, and volunteers outside the Hospice’s Sunflower Living Well Centre.

Day care patients Alan Broom (right) and Dave Marshall with Steve Nixon at the wheel and volunteer Anna Scott-Jones alongside him.

His other collector’s item – a 1903 Darracq – is entered in the famous London to Brighton Veteran Car Run on Sunday (Nov 3).

Steve and wife Beverley, from Tytherington, will set off from Hyde Park at sunrise, in a convoy of almost 400 veteran cars.

Steve and Beverley Nixon at Hyde Park Corner in their 1903 Darracq for the London to Brighton run.

Steve said: “The London to Brighton run is described as the most prestigious motoring event in the world, above even the Monaco Grand Prix and Le Mans.

“The run should take about five to six hours driving between 12 to 15 mph, though I’ll reach 22 mph on fast, flat roads.

“Hopefully, I don’t have to rebuild the engine enroute like I did last year. About 60-70 cars will break down as engines aren’t as sophisticated as a modern electric lawnmower.

“The atmosphere in Hyde Park and Pall Mall the day before is fantastic.”

Last year Steve’s car was parked next to a 1905 Spyker driven by actor Kenneth More in Genevieve, a famous 1953 film. The car Genevieve is also taking part.

Steve said: “The patients loved seeing the car and asked lots of questions. I’d be delighted to take the cars back to the Hospice.”

Nick Robinsons visit to the Hospice

Broadcaster Nick Robinson, the man behind the microphone and behind the scenes at East Cheshire Hospice, popped in to meet staff.

The presenter of BBC Radio 4’s flagship Today programme has helped the Hospice secure vital funding since becoming a patron in 2020.

His sister Dr Debbie Maxwell, a Hospice trustee, joined Nick on a tour chatting to healthcare professionals about their work.

East Cheshire Hospice patron Nick Robinson with art therapist Fay Mitchell.

Their late father Robbie spent his last few days at the Hospice and the Macclesfield-based family are grateful for the care he received.

Nick’s support has included hosting Meeting of Minds, a series of exclusive virtual events with high-profile guest speakers.

Guests have included Greater Manchester Mayor Andy Burnham; Sir John Timpson CBE, Baron David Blunkett and broadcaster Robert Peston.

April Green, the Hospice’s Philanthropy Manager, said: “We’re extremely lucky to have such a talented broadcaster as Nick as a patron.

“His Meeting of Minds series was created during Covid when guests couldn’t be present.

“These one-hour sessions have been a good touch point, attracting inspiring speakers allowing us to have a voice and share details about our innovation projects we’re trying to fundraise for.

“They let people know what we’re trying to achieve and are interactive and accessible.

“Nurses and relatives have also given a first-hand account of the impact of care.

“With Nick’s help as host, he’s helped us secure more than £3m in pledges and donations for projects such as Hospice @Home, Co-ordinated Care and our dementia services.”

Further Meetings of Minds are planned next year.

Chief Executive Karyn Johnston received a special surprise at Art Fair

Chief Executive Karyn Johnston received a special surprise to coincide with 10 years of service at East Cheshire Hospice.

Karyn was given a prestigious award for community service by Clare Hayward MBE DL, the High Sheriff of Cheshire.

The award, made at Art Fair Cheshire, recognised Karyn’s efforts leading a team which continues to put the Hospice at the forefront of end-of-life care.

Karyn joined the Hospice as head of income generation before assuming the role of chief executive six years ago.

Karyn said: “This recognition only came to me because I work with great people. I know this award is down to the team effort.

“I was embarrassed to receive a personal accolade which really belongs to my colleagues and others who support the Hospice in many different ways.”

Karyn Johnston (left) with Clare Hayward MBE DL, the High Sheriff of Cheshire.

The Hospice cared for a record 1,277 patients and thousands of family members last year, further illustrating its value to the community.

Karyn said: “Last year, via all our services, we helped the most patients in any single year in the Hospice’s history.

“That was before the extension of our new Sunflower Living Well Centre, which opened in April, so we can probably expect that figure to go up this year.

“Our aim is to help more patients year-on-year. We are driven by the needs of the community.

“For instance, we realised that people in the community wanted more care at home, so we added two more teams to our Hospice @Home service.

“This doubled the number of our teams serving our community in the comfort of their own homes.

“Our ambition does not diminish in the slightest. We’ll soon be announcing another big project to make end-of-life care even more accessible.”

The 25th year of the Art Fair was once again a major success, raising vital funds for the Hospice.

A VIP gathering to launch the fair raised a substantial sum from the sale of artwork, setting a pattern of generous giving which continued during the week-long event.

Karyn said: “The Art Fair was yet another glorious example of a superb collective effort, involving artists, buyers, sponsors and other supporters, including our wonderful volunteers.”

Art created by schools and colleges added to the community feel, as did a special display by those who access childhood bereavement counselling at the Hospice.

Guests included key Hospice sponsors and supporters, including Macclesfield MP Tim Roca.

Sponsors were AstraZeneca, The Little Greene Paint Company, Thorneycroft Solicitors, Estate Planning Solutions and MacPac.

East Cheshire Hospice re-welcomes Kim Williams

Kim Williams has gained a lot more nursing experience since she was last on the ward at East Cheshire Hospice.

It was 20 years ago that Kim was a bank nurse caring for patients there.

Now she has returned to the Hospice to help develop clinical services.

Kim has taken up an Advanced Nurse Practitioner role at after 35 years as a cancer and palliative care nurse.

Kim will be one of four ANPs at the Hospice which continues to lead the way with its palliative care provision, both within the Hospice and in the community depending on patient need.

Advanced nurse practitioner Kim Williams.

Kim said: “It’s good to be back after all these years and there are a few familiar faces.

“The Hospice cares for and supports patients and their families experiencing life threatening conditions.

“There’s an increasing need for dementia support and we treat patients with COPD, heart failure, MND and old age frailty as well as those with a cancer diagnosis.

“I’m looking forward to being part of a team working to ensure palliative support is offered in the most appropriate place, at the right time and avoiding inappropriate admission to hospital.”

Kim started her career as a specialist oncology nurse at The Christie, Manchester, where she was also a Macmillan nurse.

Her Macmillan work also included spells at Wythenshawe Hospital and St Ann’s Hospice.

She has also been a university lecturer in Manchester and Leeds focusing on cancer and palliative care.

Kim was education lead at St Ann’s before training as an ANP.

She worked in primary care in Salford during Covid and afterwards within GP and urgent care services across Manchester.

She has also attained a Masters qualification in Cancer and Palliative care and a Professional Doctorate in medical ethics.

* East Cheshire Hospice is running a Yoga Challenge for two weeks from Monday, September 9.

Participants can take part in daily yoga activities at their own pace.

The online event promotes physical health, mental well-being and community spirit while raising funds for the charity.

Organiser Luke Hughes said: “The challenge offers various yoga styles and is open to all skill levels.

“Join us in breathing, stretching and feeling good for ourselves and the Hospice. Updates and lessons will be shared via Facebook, though you don’t need an account to take part.”

Participants are invited to raise at least £50. For more details visit the Hospice website.

East Cheshire Hospice is taking its dementia services out into the community

East Cheshire Hospice is taking its dementia services out into the community, getting even closer to those who need help.

The Hospice has run dementia courses at its headquarters in Macclesfield since 2015.

It has now started operating weekly Dementia Carer Wellbeing Programmes in Wilmslow, Congleton, Knutsford and Poynton, as well as continuing on-site in Macclesfield.

This will make services more accessible to whole communities.

The expansion, which is part of a new five-year Hospice dementia initiative, is funded by Hospice supporters and a National Lottery grant.

Hospice professionals knew from experience there was increasing demand for dementia services in Cheshire East.

Debbie Kassas, the charity’s Specialist Dementia Nurse and Dementia Lead, said: “Our long-standing eight-week carers courses are very popular. We doubled capacity to six courses a year in 2021 and that helped initially but eventually the waiting lists increased again.

Debbie Kassas, Specialist Dementia Nurse and Dementia Lead at East Cheshire Hospice.  

“When we reached capacity here on-site, we knew we’d have to do something entirely different.

“A long-term aim was always to have more presence around our community, as well as Macclesfield.

“The extra funding means we’ve now gone from six courses to 15, with three in each area per year meaning we can now offer these courses to over 300 people per year.

“People can self-refer and attend courses in any of our areas. Dementia awareness is improving, so more people are seeking support.

“There are still patches of the country which don’t have such courses, so Cheshire East does have a high level of dementia support compared to other areas.”

It means dementia patients can receive up to 16 weeks of support free of charge by their family member attending Hospice courses.

During the initial eight-week course, the carer receives advice on different educational subjects while in a separate room the patient has Cognitive Stimulation Therapy (CST), including activities such as games and sounds.

Patients then have the option of a follow up eight-week course on maintenance CST.

The Hospice has expanded its team in response. Dementia Nurses Paul Dale and Laura Howard are assisted by Wellbeing Assistants Anita Hoskins and Sharon Birkinshaw with Sue Caulcott providing admin support.

Dementia Nurse Paul Dale offers advice.

Debbie said: “We’ve had a great response so far now that we’re out in the community. We want more people to be seen as soon as possible rather than be on a long waiting list.”

Call 01625 666990 or visit www.eastcheshirehospice.org.uk/dementia-support for more details.

Alzheimer’s Research UK estimates there are 982,000 people now living with dementia.

By 2040 this figure is expected to rise to 1.4 million in the UK alone.

Cheshire East has the fastest-growing ageing population in the north west.

The number of people aged over 50 living with dementia in the area is projected to almost double from 5,300 in 2009 to 9,100 in 2030.

In Cheshire East, 23 per cent of the population are over 65, compared to 19 per cent in the north west and 18 per cent in England.

There are now estimated to be more than 6,000 people living with dementia in this area.

The new-look Sunflower Living Well Centre

The new-look Sunflower Living Well Centre at East Cheshire Hospice is already reaping rewards for patients and staff.

The £1.3m facility opened four months ago and is a vital community hub for healthcare.

An extensive range of services is available for day care patients diagnosed with a life limiting illness with more programmes on the way. Many patients can get involved with the arts and crafts that the activity coordinator provides.

Modern surroundings can be adapted for courses, enhancing the visitor experience.

Exactly how health care professionals envisaged it when plans were drawn up.

Sunflower Sister Sharon Hurley said: “Everyone is delighted with how we’ve settled into our new home. It’s a fantastic facility and most importantly provides the best possible environment for our patients and staff.

Sharon Hurley, Sister at the Sunflower Living Well Centre.

“It’s not often you go to a place where everything is brand spanking new. Everywhere is lovely, fresh and bright with reclining chairs that have pressure relief cushions and bifold doors which give patients access to the garden.

“I must admit we had to get savvy with all the gadgets, but we have piped music which means we could have ABBA in the dining room and Queen in the main room.

“We’ve become quite techy and it’s lovely to have a larger nurses’ station where we are situated near the patients.

The main lounge at the centre.

“The kitchen and dining room are in dementia friendly colours, and we love the glass corridor which avoids interrupting patients during their visit.

“There’s a quiet room with its calming environment. We can divide up the main room to hold separate activities.

“It’s still early days as we get things implemented. For instance, we may bring in volunteers to run activities at Halloween or Christmas.”

Staff mark the opening of the Sunflower Living Well Centre in April.

The extra capacity means the Hospice has started hosting stand-alone courses with the Look Good Feel Better charity.

Volunteers from the beauty and wellbeing industry offer advice remotely to cancer patients via a giant screen on the third Friday of every month, which is held here in the Sunflower living well centre.

The Sunflower centre have worked with the Macmillan cancer resource centre in Macclesfield who refer for these one-off sessions.

Leaflets are found within the Macclesfield area and on the Hospice website. Participants receive a goodie bag of products and courses for men will hopefully run in the future.

There is also a six-week Live Well Feel Well programme aimed at anyone living and coping with the effects of their illness and treatments.

There are multiple services including topics such as breathlessness, fatigue, anxiety, complementary therapies, befriending, art therapy, counselling, lymphoedema, physiotherapy, dementia support, motor neurone support, staying strong and keeping safe.

* Contact the Sunflower centre on 01625 665685 for full details.

Lucas Jackson is tackling the Three Peaks Challenge

Scaling the highest peaks in England, Scotland and Wales within the space of 24 hours is the challenge facing Lucas Jackson.

Spurring him on will be the memory of his mum Annalisa who died of cancer in January, aged 52.

Lucas Jackson with mum Annalisa.

Lucas, from Macclesfield, has already raised more than £2,200 for East Cheshire Hospice where his mum spent her final days.

Lucas is tackling the Three Peaks Challenge with close friend Ben Dewe this weekend (Aug 3-4).

Lucas’ dad Simon will drive the pair on their adventure which starts at Ben Nevis and is followed by Scafell and then Snowdon.

Lucas during his Snowdon climb last year.

Annalisa, an accountant based in Manchester, died within weeks of diagnosis.

Lucas, an apprentice engineer, said: “Mum was the best person ever and it was a great shock to lose her. It all happened so quickly.

“The care she received at the Hospice was amazing and this is my way of thanking them for looking after her and many others.

“I climbed Snowdon and Scafell last year, so Ben Nevis is the only peak I’ve not visited but doing them at once is completely different.

“Thankfully dad has volunteered to drive so we can focus on the walking.

“Ben and I enjoy going to the gym and walk a lot so we’re quite active, but it’ll be tough, especially within a 24-hour target.

“I think I might book a few days off work afterwards.”

* To sponsor Lucas visit https://www.justgiving.com/page/lucas-jackson-3peaks

Deputy Matron Remembered on Hospice Memory Tree

A pioneering nurse who was there when East Cheshire Hospice opened is remembered on the Hospice’s Memory Tree.

Deputy matron Jean Stevenson described her time on the Hospice ward as the ‘jewel of her nursing career.’

Jean died last December, aged 83, just four months after losing her husband Christopher who was 77.

Jean was a key part of the Hospice’s development. She spent five and a half years on the staff from 1988 after spotting an advertisement for the role of assistant head of nursing.

It was her last job in a nursing career which spanned more than 30 years.

Son Simon said: “Mum adored the Hospice – there’s no two ways about it. She regarded it as a privilege to work there and made some lifelong friends.

“I don’t think it was a job to her, but something she did naturally. She spoke about her role with such warmth and held the Hospice in high esteem.

Hospice staff from times gone by

* Flashback to the Hospice early days. Jean Stevenson (third from right, front row) with Claire Jones (second from right, back row).

“She enjoyed working with a collection of highly skilled staff who had the right temperament and created an atmosphere of warmth and happiness with a desire to help people out.

“Mum was heavily involved in the church. Our parents had a strong faith and the bereavement aspect had a big part in her role and outlook on things.”

Family friend Randall Gray, who lives in Florida, bought a leaf dedicated to the couple’s memory.

Simon and brother David – they also have an older brother Michael – visited the Memory Tree where they met Claire Jones, a nursing colleague of Jean.

Simon said: “I now live in Abersoch and returning to the Hospice back brought a lot of memories. We were given a tour and as soon as we saw Claire recognised her and gave her a hug.

“Mum kept in touch with the Hospice when she retired and was keen on fundraising.

“We were blown away that Randall, whom we met on a family holiday when we were young, wanted to buy a leaf. We had no idea he was doing it.

“The Memory Tree has rekindled our connection with the Hospice and is a wonderful legacy of our mum’s involvement.”

The metal tree is in the gardens behind the main Hospice building. Subscription is £10 a month or £120 for a year.

Stevenson Family

* To sign up to the Memory Tree visit www.eastcheshirehospice.org.uk/memory-tree.

For queries, contact amy.williams@echospice.org.uk or call 01625 665688.

Coming back to East Cheshire Hospice was like coming home

Coming back to East Cheshire Hospice was like coming home … a quote from mum Georgia Leah reflecting on her husband Leon’s final journey.

It is 16 months since Leon, a drayman at Wincle Brewery, died from pancreatic cancer, aged 53.

His pain was so bad he was readmitted to the Hospice within 48 hours of going home following a three-week inpatient stay.

Wife Georgia is courageously sharing the couple’s story to raise awareness of how much the Hospice cares for patients like her late husband.

Ruby Leah takes on a nursing role to help her dad.

Georgia features in an emotional video produced by the Hospice and shared with supporters.

The little star of the film is three-year-old daughter Ruby who fell in love with the nurses, even helping them care for her doting dad.

Georgia said: “Leon was an amazing dad. He was so hands-on and loved spending time with Ruby.

Georgia, Ruby and Leon.  

“He started to feel pain six months after she was born and it reached the stage where he couldn’t even play with her or read her a story.

“A Macmillan nurse suggested pain management at the Hospice and he was reluctant to go in at first.

“Then he agreed to give it a try. He had his own room and Ruby loved it. That settled Leon and he felt better.

“We spent quality time together. Having a conversation and watching him read her a story and smile was everything.

“When he came out, the Hospice gave us an out of hours number and his pain suddenly got so bad that I had to ring it.

“Coming back to the Hospice was like coming home. When the ambulance took him back, I just knew they’d look after him.

“They also looked after me and were the first to give me a hug, tell me what was happening and help me make some pretty hard decisions in the few hours we’d got left.

“The nursing staff understood and knew what to say. We were also offered bereavement counselling which I found helpful.

“Ruby wanted to be a nurse, carrying medicine and hot water bottles for her dad. I bought her a nurse’s outfit from a charity shop and she carried round a doctor’s toy set. She felt she was helping and looking after Leon.

“The staff became a massive part of Ruby’s life and she’s often been back to say Hi to them.”

* To watch the video visit eastcheshirehospice.org.uk/campaign/georgias-story/

Georgia Leah is on a mission to raise funds for East Cheshire Hospice

Georgia Leah is on a mission to raise funds for East Cheshire Hospice, inspired by her husband’s story and the cost of caring for patients.

Family and friends have helped the Macclesfield mum raise around £10,000 so far.

A Snowdon climb and sky dive have already been completed since Leon died in the Hospice in March 2023.

Georgia and daughter Ruby have also taken part in the Starlight Walk twice to honour his memory.

A family fundraiser … Ruby, mum Georgia with Hannah Middlebrook and Freya Eeles at the Starlight Walk in April.

Georgia said: “We want to give back in any way we can. It’s our way of saying thank you to the Hospice for looking after Ruby’s dad.

“She asks to see the nurses every week and we go in as often as we can.”

The Hospice are highlighting the Leah family story as part of an appeal to raise the £9,362 needed every day to keep its services running. Only 21 per cent of funding comes from government.

Georgia and Ruby Leah.   

The Hospice say…

£13 could go towards a week’s worth of tea and coffee for families, helping them feel at home in the Hospice.

£38 could go towards specialist medical training to effectively manage patients’ pain, enabling people like Leon to feel more like themselves at a time when every moment matters.

£740 could pay for one night’s stay on our ward, giving families like Georgia’s dignity and space to make special memories.

* Visit the Hospice website to donate.